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A Conference for Native American Cancer Survivors and their Loved Ones
September 21, 24, 2006, Denver, Colorado |
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Thursday, September 21, 2006: Pre-conference Skills-Building Workshops
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Date |
Time |
Topic |
Participant Objectives/Description |
Presenter(s) |
9/21/2006 |
9:00 am to 5:00 pm full-day workshops (Limit class size to 15 students max) |
9/21/2006 |
8-5:00 pm |
Leadership Training |
You will learn skills to improve how you advocate for yourself and others. |
Maxine Brings Him Back Janis |
9/21/2006 |
8-5:00 pm |
How to Start Your Own Cancer Support Group Training |
You will learn skills that may help you start a local support group and ways to keep it going |
Celeste Whitewolf |
9/21/2006 |
8-5:00 pm |
Funding Training |
You will be able to (1) identify funding sources appropriate for your survivorship programs; and (2) write sections of grants to help support your survivorship efforts. |
Alice Bradley-Rocky Mt. CIS; Tuesday Johnson-MacDonald; possible Andy Miller; Sara Miller (possible) |
9/21/2006 |
8-5:00 pm |
Beginning Computer Training; hands on training |
You will be able to (1) learn how to operate a computer; (2) how to organize your files; (3) how to access the Internet and navigate the Net; (4) how to protect your computer from viruses, hackers, spyware; (5) how to use email, attach files, and avoid smut. |
Rocky Mt CIS: Candy Amerine; lead, CIS staff TBN |
9/21/2006 |
8-5:00 pm |
Intermediate Computer Training-Welcome to the Internet & Native Cancer Sites; Hands on training |
Your will be able to (1) distinguish between accurate and misleading cancer sites; (2) tailor your computer for special Internet needs (flash; webpage font size); (3) Distinguish between what the Internet is and is not; (4) use virus protection, Ad-ware, Spy-ware, and address privacy issues; (5) Use Native web based cancer resources; (6) Create Cancer Power Point Presentations. |
Eduard Gamito; Michael Douma |
Friday, September 22, 2006: Day 1: Opening, Updates from National and International Native Programs and from Scientific Experts |
Date |
Time |
Topic |
Description / Objectives |
Presenter(s) |
9/22/2006 |
8:00 AM |
Blessing/American Indian Honor Guard |
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Paul Skanks, Mohawk, Aboriginal Women's Cancer Care Project, Ontario, Canada |
9/22/2006 |
8:15 AM |
Welcome, announcements |
Welcome to Denver
Introduce Planning Committee members
Acknowledge funders
Avoidance of altitude sickness |
Yvonne Iverson, NPCOH Board Chair |
9/22/2006 |
8:30 AM |
Logistics |
meeting materials
meals, resting / breaks; location of bathrooms |
Yvonne Iverson, NPCOH Board Chair |
9/22/2006 |
8:45 AM |
"Telling Your Stories" at round tables |
Participants at each of the round tables, please share your story. who you are, tribal or ethnic affiliation, when diagnosed, type of cancer, key lessons of your journey through cancer |
All participants |
9/22/2006 |
10:15 AM |
BREAK Exercise Time! |
Participants |
National Native Cancer Program Reports |
9/22/2006 |
10:30 AM |
Sharing U.S. National Resources-Native American Cancer Resources |
You will be able to identify how to access and use NACR materials (NACES, CT, Path, Palliative Care), training programs (Survivor Support Groups), (Honoring Survivors / Wellness Event / Recipes) |
Linda Burhansstipanov, DrPH
Lisa Harjo, MS
Terri Rattler, BS
Rose Lee, BS |
9/22/2006 |
10:50 AM |
Sharing U.S. National Resources-Native People's Circle of Hope |
You will be able to identify geographically diverse NPCOH Chapters and support Circles |
CeCe Whitewolf, JD;
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9/22/2006 |
11:10 AM |
Sharing U.S. National Resources-Mayo Native Programs |
You will learn of Mayo SoE-CNP-supported Native survivorship projects from geographically diverse regions of the US. |
Judith S. Kaur, MD
Paulette Baukol, MS
Mary Alice Trapp, RN |
9/22/2006 |
11:30 AM |
Sharing Canadian National Resources-Mayo Native Programs |
Canadian Aboriginal groups and their survivorship programs |
Possible speakers:
Carmen Jones, MS
Tuesday McDonald
Terry Mitchell, PhD |
9/22/2006 |
11:50 AM |
Sharing New Zealand Maori Resources |
New Zealand Maori and their survivorship programs |
Elana Curtis, MD (Maori) |
9/22/2006 |
12:10 PM |
LUNCH |
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Repeated Breakout Sessions (break from 2:30-3:00) |
9/22/2006 |
1-2:30 pm
3-4:30 pm |
Cancer Survivor Support Circles |
You will be able to identify lessons learned from other Indigenous populations from the implementation of their Native Support Circles. |
Mary P. Lovato
Lisa Harjo
Mary Nance
Diane Weiner |
9/22/2006 |
1-2:30 pm
3-4:30 pm |
Spiritual Health and Recovery for the Native Cancer Patient and Loved Ones |
You will be able to describe different ways Native survivors have used spirituality throughout their cancer experiences. |
To be named |
9/22/2006 |
1-2:30 pm
3-4:30 pm |
Family Members, Lay Caregivers, and Loved Ones |
You will be able to identify common issues family caregivers experience and resources that are available to help the family member in daily caregiving tasks as well as strategies to avoid burn-out. |
unknown |
9/22/2006 |
1-2:30 pm
3-4:30 pm |
Final Will and Testament; Living Wills and Advanced Directives |
You will write sections of each major section that is included in a final written will as well as write segments of advanced directives |
Celeste Whitewolf, J.D. |
9/22/2006 |
2:30-3:00 pm |
Exercise BREAK |
Participants |
9/22/2006 |
5:00 PM |
Adjourn |
9/22/2006 |
7:00 PM |
Honoring Ceremony for those who have passed or need our prayers |
Participants may provide name of patient, photo or article from participant to be included in the ceremony |
Maxine Brings Him Back-Janis |
Saturday, September 23, 2006 Day 2. Native-Community-Driven and/or Community-Based Participatory Survivorship and Quality of Life |
Date |
Time |
Topic |
Description / Objectives |
Presenter(s) |
9/23/2006 |
8:00 AM |
Aboriginal Blessing |
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Doris Cook, MS [Mohawk] |
9/23/2006 |
8:15 AM |
Announcements & energizer |
Announcement regarding transportation to evening dinner and powwow, other issues as they arrise. |
Mary Nance-NPCOH Board-Vice Chair |
Regional Native Cancer Program Reports |
9/23/2006 |
8:30 a.m. |
Hunstman Cancer Institute |
Learn about the Native cancer programs for the Inter-Mountain West and Alaska |
Phyllis Nassi and Lynne Hall |
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8:50 a.m. |
Regional Native American Community Networks Program |
Learn about Native cancer programs for Oregon, Washington, Alaska, Idaho, Wyoming, Montana, North Dakota and South Dakota |
John Simmons, Rose James, PhD |
9/23/2006 |
9:10 AM |
Regional Cancer Differences in Indian Country |
You will be able to describe (1) reasons why it is important for your local survivorship program to collect data; (2) how national Native American cancer data can be used to help you in grant applications to support your local program. |
Roberta Paisano, MHA [Laguna Pueblo Tribe] |
9/23/2006 |
9:30 a.m. to 10:15 a.m. |
Regional Report from Native Cancer Survivors |
Native community survivorship programs from the Great Lakes, Southeastern, Alaska, Canadian Aboriginals, Southwestern, Northwestern, South central and Northern Plains regions |
To be named |
9/23/2006 |
10:15 AM |
BREAK |
Exercise Time |
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9/23/2006 |
10:30 AM |
Update of new NACES QOL education programs |
You will be able to (1) identify new quality of life education modules from the NACES web site; (2) describe how to access and use the resources; (3) critique the NACES marketing kit. |
Linda U. Krebs, RN, PhD, AOCN
Linda Burhansstipanov, MSPH, DrPH
Eduard Gamito, BS
Michael Douma, BS |
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11:00 AM |
Survivorship Questionnaire |
Survivorship data collected by NACR/MAYO/LAF |
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9/23/2006 |
11:30 AM |
Questions |
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Participants |
9/23/2006 |
11:45 AM |
LUNCH |
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Repeated Breakout Sessions |
9/23/2006 |
1-2:30 pm
3 - 4:30 p.m. |
Men's Cancer Issues |
You will learn how Native men's cancer survivors' education and support groups differ from women's programs and how to recruit and maintain Native men's programs |
John Simmons, Regional Native American Community Network Program |
9/23/2006 |
1-2:30 pm
3 - 4:30 p.m. |
Thriving |
You will learn cultural practices Native people have used to move from a person diagnosed with cancer to a person living with cancer |
Doug Six-Killer (finder) |
9/23/2006 |
1-2:30 pm
3 - 4:30 p.m. |
How to Say the Word "Cancer" and other sensitive phrases to members of your Community |
You will learn how others have successfully implemented cancer programs that were understandable to Native community members. Basic Native-specific cancer programs are requested to submit abstracts. . |
Phyllis Nassi/Lynn Hall Huntsman Cancer Institute |
9/23/2006 |
1-2:30 pm
3 - 4:30 p.m. |
Long term effects of cancer treatment |
You will learn about what long term effects a cancer survivor might expect following cancer treatment |
Dr. Judith Kaur will be asked to present |
9/23/2006 |
2:30-3:00pm |
BREAK Exercise Time |
Participants |
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3:00-4:30 pm |
NPCOH Annual Meeting |
NPCOH Board |
9/23/2006 |
4:30 PM |
Traditional Indian Healers and Cancer Recovery |
Traditional spiritual healer will share how he has worked with Native cancer patients during and following the patient's cancer experiences. |
Paul Skanks, Mohawk, Aboriginal Women's Cancer Care Project, Ontario, Canada |
9/23/2006 |
5:30 PM |
Blessing and Closing |
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9/23/2006 |
7:00 p.m. |
Celebration of Life Dinner and Powwow |
Hosted by the Denver Cancer Survivors |
Sunday, September 24, 2006; 9:00 am through noon |
Post-conference Workshop for Former Participants of the IHS 5-day Survivor Support Training Program, "A Gathering of Cancer Support" conducted by Mary P. Lovato since 1997 |